These sites have an abundance of information on hematology for patients with blood disorders and for their families. They include many links to outside information and groups. See also our page on Nutrition for specific links regarding diet.
American Society of Hematology - for Patients
Professional organization. Includes information about society publications and meetings. Provides educational materials for scientists, doctors, and patients.
The Amyloidosis Foundation is committed to supporting patient education, advocacy programs, and research relating to amyloidosis. It is a merger between two organizations, the Amyloidosis Research Foundation and the Amyloidosis Support Network.
» Aplastic Anemia and MDS International Foundation
AA&MDSIF serves as a resource for patient assistance, advocacy, and support, and funds research to find treatments and a cure for aplastic anemia, myelodysplastic syndromes, and related bone marrow diseases. Please call 800-747-2820 to receive information in English,Spanish and French.
» National Blood Clot Alliance
The National Blood Clot Alliance is a nationwide health organization committed to preventing and treating the array of major health problems caused by blood clots. The organization’s goal is to ensure that people suffering from thrombosis and thrombophilia receive early diagnosis, optimal treatment, and quality support by fostering research, education, support, and advocacy on behalf of those at risk of, or affected by, blood clots.
» National Hemophilia Foundation
The mission of NHF is education, research, and advocacy on behalf of people with bleeding disorders.
» Platelet Disorder Support Association
Home of the ITP People Place for you or your loved one with immune (idiopathic) thrombocytopenic purpura. The organization is devoted to bringing you the most timely, accurate and comprehensive information about ITP and assisting you in meeting others who share your interests.
» Sickle Cell Disease Association of America
SCDAA’s mission is to promote finding a cure for sickle cell disease while improving the quality of life for individuals and families dealing with this disease.
» Thalassaemia International Federation
The mission of TIF is to promote the appropriate treatment and a high quality of life for every patient with thalassaemia, to encourage prevention policies that aim to reduce the number of new affected births, and to encourage research leading to improved treatments and a cure for the disorder.